The following is how the rest of the week went. A lot of this is from my husband's prospective as I have few memories from this week.
Tuesday, 11/27/18 - My husband said I was repeating the same questions every 7 minutes "Where am I?", "Why doesn't my brain work?", and "I want to go home."
Our 11 and 13 year old sons were able to come visit this day. It was a very confusing day for them. I've been told I said "Hi" and "How is school?" but not much conversation happened. I don't remember seeing them. My words were very slow and I would stop and "look up" into my brain and try to think of a word I wanted to say. I was very confused and nothing made sense.
Wednesday, 11/28/18 - The first cerebral angiogram was performed finding the cause for the hemorrhaging and other symptoms. I did not have a true diagnosis until these results came in. My husband says I barely spoke this day at all but when I did it was the same questions as the day before and a lot of confusion.
Thursday, 11/29/18 - Even though my memory of this day is very scant, I know I had visitors this evening. My husband has a video of me sitting up in the hospital bed having conversations with them and being somewhat "normal" although watching the videos now, my voice is different and does not sound like me.
Friday, 11/30/18 - After waking up my husband was asking what I wanted for breakfast and said I kept looking at him strangely so he asked me my name and I mumbled something but definitely not my name, more like a "Mumoha", had a "freak out" moment, then closed my eyes and didn't talk. I was moved back to ICU and an EEG and long-term EEG was performed on this day and was found to be abnormal and indicative of a focal cerebral dysfunction in the left temporal region.
Tuesday, 11/27/18 - My husband said I was repeating the same questions every 7 minutes "Where am I?", "Why doesn't my brain work?", and "I want to go home."
Our 11 and 13 year old sons were able to come visit this day. It was a very confusing day for them. I've been told I said "Hi" and "How is school?" but not much conversation happened. I don't remember seeing them. My words were very slow and I would stop and "look up" into my brain and try to think of a word I wanted to say. I was very confused and nothing made sense.
Wednesday, 11/28/18 - The first cerebral angiogram was performed finding the cause for the hemorrhaging and other symptoms. I did not have a true diagnosis until these results came in. My husband says I barely spoke this day at all but when I did it was the same questions as the day before and a lot of confusion.
Thursday, 11/29/18 - Even though my memory of this day is very scant, I know I had visitors this evening. My husband has a video of me sitting up in the hospital bed having conversations with them and being somewhat "normal" although watching the videos now, my voice is different and does not sound like me.
Friday, 11/30/18 - After waking up my husband was asking what I wanted for breakfast and said I kept looking at him strangely so he asked me my name and I mumbled something but definitely not my name, more like a "Mumoha", had a "freak out" moment, then closed my eyes and didn't talk. I was moved back to ICU and an EEG and long-term EEG was performed on this day and was found to be abnormal and indicative of a focal cerebral dysfunction in the left temporal region.
Saturday, 12/1/18 - I was moved back to the regular neuro floor this morning. My husband went home to spend time with our boys again this day. A friend came up that evening to stay with me overnight. She could probably tell you a lot more but I know it wasn't the best experience for her and I don't want to prod her with questions.
Sunday, 12/2/18 - I know that my morning was similar to Friday morning. I could hear everything around me but could not figure out how to tell my brain to open my eyes or move my body. I was sent for another scan but there were no changes. My husband brought the boys back up with him. By the afternoon I was able to open my eyes again but I was not speaking. I was writing (in horrible handwriting for those of you that know my handwriting) to ask and answer questions. We had more friends come up this evening and they were able to take the boys back with them so my husband could stay.
Monday, 12/3/18 - It was determined that I was stable enough to be released to a local medical rehab facility. A friend came by to visit and was barely there 10 minutes before we got the news and were packing our things to leave. We are grateful he was there because he was able to follow us back to our hometown. This is the first day that I think it really clicked that I was not remembering things. I was waiting at the door in a wheelchair with someone from the hospital while my husband went to get our vehicle and the man asked me what type of vehicle we should be looking for and I realized that I didn't know.
Tuesday, 12/4/18 through Friday, 12/7/18 - I was ordered to go through physical therapy, occupational therapy and speech therapy. I did 1 hour of each per day. I wish I would have kept some of the papers I was writing on then. The difference in my handwriting day to day was extraordinary! I did not recognize the handwriting though and had so much difficulty with the thought processes for the exercises in physical therapy. I was walking with my toes first, swinging both of my arms in the same direction at the same time, and just to think of left or right took a lot of brain power. I was so exhausted every day. We had several friends come and visit to help keep my mind off things and be as "normal" as possible. The boys got to come visit too. My husband was keeping the boys at home now that we were in the same town and he was going home in the evenings to be with them overnight. Most nights I didn't care to be "alone" in the rehab facility. I was so exhausted I would just crash...except for the hourly checks by staff to check my vitals and such. I was napping during the day as well because I just couldn't get enough quality rest.
Friday, 12/7/18 4pm - Released to go HOME!!!!
Sunday, 12/2/18 - I know that my morning was similar to Friday morning. I could hear everything around me but could not figure out how to tell my brain to open my eyes or move my body. I was sent for another scan but there were no changes. My husband brought the boys back up with him. By the afternoon I was able to open my eyes again but I was not speaking. I was writing (in horrible handwriting for those of you that know my handwriting) to ask and answer questions. We had more friends come up this evening and they were able to take the boys back with them so my husband could stay.
Monday, 12/3/18 - It was determined that I was stable enough to be released to a local medical rehab facility. A friend came by to visit and was barely there 10 minutes before we got the news and were packing our things to leave. We are grateful he was there because he was able to follow us back to our hometown. This is the first day that I think it really clicked that I was not remembering things. I was waiting at the door in a wheelchair with someone from the hospital while my husband went to get our vehicle and the man asked me what type of vehicle we should be looking for and I realized that I didn't know.
Tuesday, 12/4/18 through Friday, 12/7/18 - I was ordered to go through physical therapy, occupational therapy and speech therapy. I did 1 hour of each per day. I wish I would have kept some of the papers I was writing on then. The difference in my handwriting day to day was extraordinary! I did not recognize the handwriting though and had so much difficulty with the thought processes for the exercises in physical therapy. I was walking with my toes first, swinging both of my arms in the same direction at the same time, and just to think of left or right took a lot of brain power. I was so exhausted every day. We had several friends come and visit to help keep my mind off things and be as "normal" as possible. The boys got to come visit too. My husband was keeping the boys at home now that we were in the same town and he was going home in the evenings to be with them overnight. Most nights I didn't care to be "alone" in the rehab facility. I was so exhausted I would just crash...except for the hourly checks by staff to check my vitals and such. I was napping during the day as well because I just couldn't get enough quality rest.
Friday, 12/7/18 4pm - Released to go HOME!!!!
It is so evident to me that I am still here for a reason! I can tell my story and share the amazing works of our Lord and Savior Jesus Christ. I can hardly even describe the feeling, but I knew He was with me the entire time and even before this, preparing me and our family with everything we would need to get through this. The friends, family, fellow church members...everything came together in only a way He could provide.
I'm not crying, I'm not crying, im not crying...okay maybe just a little. Oh sweetheart. You are so brave sharing your story. So inspiring. You are incredibly loved.
ReplyDeleteWOW! What an inspiration you are...AGAIN, my friend!
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